Hard-working Member for Capricornia, Michelle Landry, has secured a win for children living with Cystic Fibrosis, with Trikafta now available on the Pharmaceutical Benefits Scheme for children aged six to 11.
Earlier this year, Ms Landry met with the Sewell family whose daughter, Mila, was diagnosed at age one with Cystic Fibrosis.
Federal Member for Capricornia, Michelle Landry, said she was touched by Mila’s story and her battle to live, as she underwent multiple physiotherapy treatments and handfuls of drugs daily.
“Following my meeting with Mila and her family, I spearheaded the campaign to have Trikafta be added to the PBS.
“We held media conferences, met with Vertex who are the suppliers of Trikafta and peak body organisations who represent these children, as well as speeches in Parliament.
“Today, we have witnessed what people power can do and I am proud to be a part of this outcome.
“These children have a bright future ahead of them and I wish them long, happy and healthy lives,” Ms Landry said.
Trikafta will now be available for over 500 children.
While there is no cure for Cystic Fibrosis, Trikafta can further prevent the deterioration of the lungs and airways. By limiting the damage, it not only improves their health but also extends an individual’s life expectancy.
CEO of Cystic Fibrosis Queensland, Petrina Fraccaro, said today’s announcement is a momentous occasion for the Cystic Fibrosis community.
“Trikafta is a game-changer for those who live with Cystic Fibrosis.
“We know the sooner an individual has access to Trikafta, the better their health outcomes are through reduced hospitalisations, less infections, reduces the need for lung transplants and extends their life expectancy.
“I wish to personally thank the Federal Member for Capricornia, Michelle Landry, for her support and advocacy for the Cystic Fibrosis community in rural, regional and remote areas,” Ms Fraccaro said.
