Federal Member for Capricornia, Michelle Landry, has called on the Federal Labor Government to green light funding for the life changing medication, Trikafta.
Trikafta, used as a treatment for Cystic Fibrosis, was added to the PBS early last year for children aged 12 and over.
Recently, Member for Capricornia, Michelle Landry, met with parents, Jaimee and Mitchell, whose daughter, Mila, lives with Cystic Fibrosis.
“It was heartbreaking to hear of what Mila has to do on a daily basis just so she can breathe. The many medications, nebuliser treatments and physiotherapy that Mila endures is more than any young child should bear.
“It is incredible to see her so vibrant and energetic. I know many of us wouldn’t have the strength to tolerate what Mila does.” Ms Landry said.
While there is no cure for Cystic Fibrosis, Trikafta can further prevent the deterioration of the lungs and airways. By limiting the damage, it not only improves their health but also extends an individual’s life expectancy.
Unfortunately, the cost to access Trikafta is over $250,000, leaving this treatment out of reach for many families.
“The sooner a child can gain access to this wonder drug, the less damage their lungs will be left with.
“Trikafta was approved by the PBAC in December and yet, we are still waiting on the Federal Government to commit the funding needed for these children to improve their quality of life.” Ms Landry said.
Cystic Fibrosis Queensland CEO, Petrina Fraccaro, said that our youngest children don’t have time on their side to wait until they’re 12 to start Trikafta.
“Trikafta was approved for listing by the PBAC just before Christmas last year, but this has turned out to be not quite the Christmas present our community needed.
“Here we are, a month later, still with no certainty nor commitment from the Government that they will fund Trikafta for our littlest members.
“Children aged 6 – 11 years need access to this life-changing drug today. The sooner we can do this, the sooner we can halt the life-threatening lung exacerbations associated with cystic fibrosis.” Ms Fraccaro said.
